{"id":60105,"date":"2017-04-29T13:08:36","date_gmt":"2017-04-29T12:08:36","guid":{"rendered":"http:\/\/www.lavirgendelcamino.info\/wordpress\/?p=60105"},"modified":"2021-11-22T12:07:36","modified_gmt":"2021-11-22T11:07:36","slug":"dia-mundial-osteogenesis-imperfecta","status":"publish","type":"post","link":"https:\/\/www.lavirgendelcamino.info\/wordpress\/dia-mundial-osteogenesis-imperfecta\/","title":{"rendered":"La Virgen del Camino acoger\u00e1 el 6 de Mayo el D\u00eda Mundial de la Osteog\u00e9nesis Imperfecta"},"content":{"rendered":"<p style=\"text-align: justify;\">Esta ma\u00f1ana tuvo lugar en la Biblioteca Municipal de La Virgen del Camino el acto de presentaci\u00f3n\u00a0del <strong>D\u00eda Mundial de la Osteog\u00e9nesis Imperfecta<\/strong>, el cual se celebrar\u00e1 en La Virgen del Camino el pr\u00f3ximo <strong>S\u00e1bado 6 de Mayo<\/strong>.<\/p>\n<p style=\"text-align: justify;\">Este a\u00f1o el municipio de Valverde de la Virgen coge el relevo de Valencia de Don Juan tras serle diagnosticada recientemente la enfermedad a Manuel\u00a0Rub\u00edn, un ni\u00f1o de La Virgen del Camino de tan solo siete a\u00f1os.<\/p>\n<p style=\"text-align: justify;\">Dentro de los actos que se desarrollar\u00e1n durante la jornada del S\u00e1bado por la tarde en el Auditorio al Aire Libre de La Virgen del Camino los m\u00e1s peque\u00f1os disfrutar\u00e1n de merienda, cuentacuentos, zumba, actuaciones infantiles, pintacaras y globloflexia.<\/p>\n<p style=\"text-align: justify;\">Adem\u00e1s para finalizar la tarde se realizar\u00e1 una suelta de globos amarillos con el acompa\u00f1amiento musical de los profesores de la Escuela de M\u00fasica de Valverde de la Virgen.<\/p>\n<h3 style=\"text-align: justify;\"><strong>\u00bfQu\u00e9 es la osteog\u00e9nesis imperfecta?<\/strong><\/h3>\n<p style=\"text-align: justify;\">La osteog\u00e9nesis imperfecta es una enfermedad &#8216;rara&#8217; que consiste en una excesiva fragilidad \u00f3sea que se presenta desde el nacimiento y no tiene cura. Desde las dos asociaciones existentes en Espa\u00f1a que abarcan lo m\u00e1s de 3000 casos conocidos buscan financiaci\u00f3n para ayudar a las familias afectadas.<\/p>\n<p style=\"text-align: justify;\">En la provincia de Le\u00f3n se conocen tres casos, entre los que se encuentra tambi\u00e9n Slavi Mart\u00ednez, un ni\u00f1o de Valencia de Don Juan, cuya madre, Nuria Contreras, es vocal de la Junta Directiva de la Asociaci\u00f3n AMOI. Nuria en colaboraci\u00f3n con la familia de Manu ha preparado todos los actos que el 6 de Mayo acoger\u00e1 La Virgen del Camino.<\/p>\n<p style=\"text-align: justify;\">Durante los pr\u00f3ximos d\u00edas diferentes grupos de actividades y colectivos de La Virgen del Camino se sumar\u00e1n a la campa\u00f1a de apoyo a la Osteog\u00e9nesis Imperfecta promovida por AMOI que se realizar\u00e1 en las redes sociales con el hashtag <strong>#OIMemorizalo<\/strong>. La campa\u00f1a de este a\u00f1o 2017 consistir\u00e1 en subir un &#8216;selfie&#8217; con una l\u00ednea amarilla pintada en la frente a cualquier perfil o p\u00e1gina de redes sociales.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-60106\" src=\"http:\/\/www.lavirgendelcamino.info\/wordpress\/wp-content\/uploads\/2017\/04\/dia-mundial-de-la-osteogenesis-imperfecta-2017-web-e1493462398132.jpg\" alt=\"\" width=\"1000\" height=\"1415\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Esta ma\u00f1ana tuvo lugar en la Biblioteca Municipal de La Virgen del Camino el acto de presentaci\u00f3n\u00a0del D\u00eda Mundial de la Osteog\u00e9nesis Imperfecta, el cual se celebrar\u00e1 en La Virgen del Camino el pr\u00f3ximo S\u00e1bado 6 de Mayo. Este a\u00f1o el municipio de Valverde de la Virgen coge el relevo de Valencia de Don Juan [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":60107,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"gallery","meta":{"footnotes":""},"categories":[1681],"tags":[3800,3801,272,1721,1840,1746,3799,214,3798,708,1873,590],"class_list":["post-60105","post","type-post","status-publish","format-gallery","has-post-thumbnail","hentry","category-ayuntamiento-informa","tag-6-de-mayo","tag-amarillo","tag-cuentacuentos","tag-dia-mundial","tag-globoflexia","tag-globos","tag-imperfecta","tag-la-virgen-del-camino","tag-osteogenesis","tag-pintacaras","tag-sabado","tag-zumba","post_format-post-format-gallery"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>La Virgen del Camino acoger\u00e1 el 6 de Mayo el D\u00eda Mundial de la Osteog\u00e9nesis 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